Rare Disease Stakeholder Information Outreach and Impact Officer 

Closing Date: Monday 8 September 2025

This is an exciting opportunity for an experienced, highly motivated individual to join our vibrant, multidisciplinary rare disease
research team. The post-holder will focus on sharing information and communicating with a broad range of stakeholders, promoting
rare disease research to diverse audiences to deepen understanding of research, outcomes, relevance, and impact via multiple
channels including website, social media, newsletters, videos, visual storytelling, briefings, reports, traditional scientific presentations
and papers. In collaboration with senior colleagues, you will highlight strategic projects within a diverse portfolio, supporting a
collaborative research environment that fosters a culture of trust and mutual respect. The role requires excellent interpersonal skills
alongside scientific and technical understanding relevant for diagnosis and treatment of rare diseases.
This role provides a rare opportunity to work in partnership with academic and clinical colleagues, professional support teams,
community groups, policy makers, and industrial collaborators. The post-holder will support the (i) the planning and delivery of events
and engagement activities with stakeholders, (ii) the recording and reporting of outcomes and impact, (iii) the promotion, outreach and
communication of rare disease research, (iv) liaising with local and international stakeholders, and (v) supporting the coordination and
delivery of strategic projects. The post-holder will be based at the Centre for Public Health at Queen’s University Belfast.

For more information on how to apply:

Rare Disease Stakeholder Information Outreach and Impact Officer